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He is a brave and strong-willed young man, and he has chosen to live and manage his issues without medication. He describes the pain, frustration and embarrassment that he lives with; he has endured chronic pain for nearly 10 years due to his severe, seizure-like tics. Tourette syndrome is an inherited disorder. Some 99 percent of males and 75 percent of females carrying the genes for TS will display symptoms. This means that my son will have to confront the possibility that his children will inherit this painful and misunderstood disorder.

He has already declared that he will not have children; he does not want to inflict what he has endured on an innocent child. That’s his decision to make, and, who knows? With the passage of time and improved treatments, perhaps he will change his mind.

But how does it feel to know that society sees you as defective, as a problem to be repaired or edited out? How does he see himself? His voice is the one you need to hear.

… Read More

Image: By I, Ezra Katz, CC BY-SA 3.0, https://commons.wikimedia.org/w/index.php?curid=2346509

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The Atlantic

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