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In a report published Tuesday, an expert committee convened by the National Academies of Sciences, Engineering, and Medicine concluded that scientists and their institutions should routinely — and carefully — consider whether to return study results to participants. The report, which was sponsored by three of the leading federal health agencies, also recommends revising a federal regulation that’s caused confusion about when it’s permissible to share research findings with a participant.

“It’s really calling for a sea change in how we handle the issue of research results in studies with human specimens,” said Amy Lynn McGuire, one of the report’s authors and a biomedical ethics professor at Baylor College of Medicine.

…continue reading ‘Experts Urge Researchers to Routinely Share Test Results with Study Participants’

Report: Returning Individual Research Results to Participants

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