It’s generally “ethically unacceptable” agrees Dr Ruth Faden, the founder of the Johns Hopkins Berman Institute of Bioethics. Nevertheless, she said that the patient’s rights and interest have to be balanced with the potential benefits of the research to humanity as a whole

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This spring, the National Institutes of Health will start recruiting participants for one of the most ambitious medical projects ever envisioned. The goal is to find one million people in the United States, from all walks of life and all racial and ethnic groups, who are willing to have their genomes sequenced, and to provide their medical records and regular blood samples

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An Amazon of Tumors

September 18, 2015

What if there were a vast library of crowd-sourced samples of rare cancers, and scientists could order them simply using ‘one-click shopping’?

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