On May 6, the “All of Us” study started enrolling participants. This national study will be one of the largest ever examining the connection between genetics, behavior and medical outcomes, with a goal of 1 million or more participants. Anyone over the age of 18 in the U.S. can join

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Q&A featuring comments from our Juli Murphy Bollinger

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The Johns Hopkins Fogarty African Bioethics Training Program & the University of Zambia invite you to join a research ethics webinar. Dr. Paulina Tindana will present on challenges in seeking informed consent for genomics research & biobanking, contrasting available models and making a case for broad consent for international genetics/genomics research when accompanied by effective community engagement strategies

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“It’s effectively a sperm donation without consent — and that shouldn’t happen.” says Jeffrey Kahn, director of the Johns Hopkins Berman Institute of Bioethics.

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Voluntary guidelines aim to combat ‘helicopter’ science and ensure that studies benefit African citizens and scientists

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This spring, the National Institutes of Health will start recruiting participants for one of the most ambitious medical projects ever envisioned. The goal is to find one million people in the United States, from all walks of life and all racial and ethnic groups, who are willing to have their genomes sequenced, and to provide their medical records and regular blood samples

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Kellogg and his wife, Luella, had adopted Gua from Cuba at 7-and-a-half months to see if a chimp would act like a human if raised with their 10-month-old son and surrounded by other people — a bizarre thesis in any era but especially in 1931. Today, the experiment would never pass an ethics board. “Experimenting on your own children is highly problematic,” says Jeffrey Kahn of the Johns Hopkins Berman Institute of Bioethics

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Southern Illinois University’s medical school has halted all herpes research, one of its most high-profile projects, amid growing controversy over a researcher’s unauthorized methods offshore and in the US

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