So it happened again. An underreported story about a half-baked advance in cancer medicine caught fire and scorched its way through social media, onto network TV, and into the minds of millions of people

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In two studies published recently, researchers ran systematic searches through crowdfunding sites to see just how pervasive this issue is. They identified thousands of campaigns raising millions of dollars for medical treatments that are not backed by science

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Clear Up This Stem-Cell Mess

September 27, 2018

Confusion about mesenchymal stem cells is making it easier for people to sell unproven treatments, warn Douglas Sipp, Pamela G. Robey and Leigh Turner

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A desperate but determined group of parents raised millions through golf tournaments and cocktail parties to support research for drugs to fight cystinosis, a rare, fatal childhood disease. They were ecstatic when a pill called Procysbi was approved in 2013

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People with multiple sclerosis sometimes become desperate and will travel to other countries for experimental stem cell treatments. That’s not always a good idea

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The FDA is powerless to stop them. The newly enacted right-to-try law allows drug makers to earn a profit by selling unproven therapies to desperate and dying patients

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Stem cell clinics multiply, with heartbreaking results for some patients

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Families of patients are starting advocacy groups, raising money for research, and founding biotech companies to advance cures for rare diseases

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