

An Advance Directive for Patients With DementiaApril 30, 2018 |
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An Advance Directive for Patients With DementiaApril 30, 2018 |
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I had hoped that by now most adults in this country would have completed an advance directive for medical care and assigned someone they trusted to represent their wishes if and when they are unable to speak for themselves. Alas, at last count, barely more than one-third have done so, with the rest of Americans leaving it up to the medical profession and ill-prepared family members to decide when and how to provide life-prolonging treatments.
But even the many who, like me, have done due diligence — completed the appropriate forms, selected a health care agent and expressed their wishes to whoever may have to make medical decisions for them — may not realize that the documents typically do not cover a likely scenario for one of the leading causes of death in this country: dementia. Missing in standard documents, for example, are specific instructions about providing food and drink by hand as opposed to through a tube.
Advanced dementia, including Alzheimer’s disease, is the sixth leading cause of death overall in the United States. It is the fifth leading cause for people over 65, and the third for those over 85. Yet once the disease approaches its terminal stages, patients are unable to communicate their desires for or against life-prolonging therapies, some of which can actually make their last days more painful and hasten their demise.
…continue reading ‘An Advance Directive for Patients with Dementia’
Image: By Gelonida – Own work, CC BY 3.0, https://commons.wikimedia.org/w/index.php?curid=29514151
Alfie Evans’s Father Begs Pope Francis to ‘Save Our Son’April 18, 2018 |
Father of seriously ill British toddler flies to Vatican to urge pontiff to intervene in legal fight
Father of seriously ill British toddler flies to Vatican to urge pontiff to intervene in legal fight
Nectome will preserve your brain, but you have to be euthanized first
Nectome will preserve your brain, but you have to be euthanized first
The startup accelerator Y Combinator is known for supporting audacious companies in its popular three-month boot camp.
There’s never been anything quite like Nectome, though.
Next week, at YC’s “demo days,” Nectome’s cofounder, Robert McIntyre, is going to describe his technology for exquisitely preserving brains in microscopic detail using a high-tech embalming process. Then the MIT graduate will make his business pitch. As it says on his website: “What if we told you we could back up your mind?”
So yeah. Nectome is a preserve-your-brain-and-upload-it company. Its chemical solution can keep a body intact for hundreds of years, maybe thousands, as a statue of frozen glass. The idea is that someday in the future scientists will scan your bricked brain and turn it into a computer simulation. That way, someone a lot like you, though not exactly you, will smell the flowers again in a data server somewhere.
Image: By Gaetan Lee from London, UK – Human brain – please add comment or fav this if you blog with it., CC BY 2.0, https://commons.wikimedia.org/w/index.php?curid=4624928
Doctors Learn How To Talk To Patients About DyingFebruary 12, 2018 |
Lynn Black’s mother-in-law, who had lupus and lung cancer, was rushed into a hospital intensive care unit last summer with shortness of breath. As she lay in bed, intubated and unresponsive, a parade of doctors told the family “all good news.”
Lynn Black’s mother-in-law, who had lupus and lung cancer, was rushed into a hospital intensive care unit last summer with shortness of breath. As she lay in bed, intubated and unresponsive, a parade of doctors told the family “all good news.”
A cardiologist reported the patient’s heart was fine. An oncologist announced that the substance infiltrating her lungs was not cancer. An infectious-disease doctor assured the family, “We’ve got her on the right antibiotic.”
With each doctor’s report, Black recalled, most of her family “felt this tremendous sense of relief.”
But Black, a doctor herself, knew the physicians were avoiding the truth: “She’s 100 percent dying.”
“It became my role,” Black said, to tell her family the difficult news that her mother-in-law, who was in her mid-80s, was not going to make it out of the hospital alive. Indeed, she died there within about a week.
Image By Seattle Municipal Archives from Seattle, WA – Doctors with patient, 1999, CC BY 2.0, https://commons.wikimedia.org/w/index.php?curid=9842204
AI Can Predict When We’ll DieFebruary 5, 2018 |
Here’s why that’s a good thing. A new algorithm could ease critically ill patients’ final days.
Here’s why that’s a good thing. A new algorithm could ease critically ill patients’ final days.
Artificial intelligence is proving to be a revolutionary tool across many industries, but the technology is having a particularly big impact when it comes to healthcare. Researchers are using AI to combat the flu, by building improved seasonal forecasts that inform the development of influenza vaccines, and the technology is already helping to diagnose rare diseases so that patients can get the treatments they need.
Now, scientists have found a new medical application for AI: predicting when a seriously ill patient admitted to the hospital will likely die.
In hospitals, palliative care teams are charged with improving the quality of life of gravely ill patients and making sure their final wishes are carried out. But clinicians sometimes don’t refer their patients to these specialists because they believe their patients are better off than they really are.
Image via Flickr Some rights reserved by lkaestner
Roger Kligler writes, “I’m a doctor with incurable stage 4 prostate cancer. When my suffering becomes intolerable, I hope my doctors will permit me the option to end it peacefully with medical aid in dying. Medical aid in dying gives mentally capable, terminally ill adults with six months or less to live the option to request a prescription medication they can choose to take in order to end unbearable suffering by gently dying in their sleep.”
Roger Kligler writes, “I’m a doctor with incurable stage 4 prostate cancer. When my suffering becomes intolerable, I hope my doctors will permit me the option to end it peacefully with medical aid in dying. Medical aid in dying gives mentally capable, terminally ill adults with six months or less to live the option to request a prescription medication they can choose to take in order to end unbearable suffering by gently dying in their sleep.”
When I was in my 40s, I watched my mother and my father-in-law suffer agonizing deaths from cancer. I remember thinking, “That’s not the way I want to die.” As an internist, I have treated patients in the office and the hospital, including intensive care units. I took over the primary care of patients who were terminally ill when specialists were no longer able to help them. I passionately believed that my professional responsibilities included caring for my patients at the ends of their lives.
I was involved in most aspects of pain control and hospice care. For some patients, I provided palliative sedation to unconsciousness, which means giving intravenous morphine to someone who is terminally ill and has excruciating, uncontrolled pain, essentially putting them to sleep until death occurs. I have had discussions with patients about putting them on a ventilator and later disconnecting it to end prolonged dying processes. I helped patients decide whether or not to undergo treatment when the alternative was death. However, when a terminally ill patient with cancer asked me to help him die peacefully to end his suffering, I was afraid that I might lose my license or, worse still, end up in prison. I’m embarrassed to say that I declined to give him a lethal prescription, as I put my needs ahead of his. That is a morally compromised position.
Image: By jenny downing – glass half-full, CC BY 2.0, https://commons.wikimedia.org/w/index.php?curid=8247267
Physician-Assisted Suicide Won’t Atone for Medicine’s ‘Original Sin’January 31, 2018 |
Ira Byock writes, “Centuries from now, one of the things our era will be known for is the plague of dying badly. A growing number of physicians believe that one solution is helping their dying patients choose to end their lives. I disagree.”
Ira Byock writes, “Centuries from now, one of the things our era will be known for is the plague of dying badly. A growing number of physicians believe that one solution is helping their dying patients choose to end their lives. I disagree.”
I’m proud of being a physician and a lifelong political progressive. I ardently believe in human rights. But there are some things doctors must not do. Intentionally ending patients’ lives is chief among them.
Prolonged suffering before death emerged as a public health crisis in the mid-20th century. This first-world scourge, so persistent that few dare to imagine it can be eradicated, is a direct result of modern medicine’s original sin: believing that we can vanquish death. Given doctors’ success at saving lives threatened by severe injuries and infections, they presumed they could overmaster death. Yet despite the prowess of 21st-century medicine, my colleagues and I have yet to make a single person immortal. Instead, we have condemned countless incurably ill patients to needless anguish.
Image via Flickr Some rights reserved by Cayusa
What Does It Mean To Die?January 29, 2018 |
When Jahi McMath was declared brain-dead by the hospital, her family disagreed. Her case challenges the very nature of existence
When Jahi McMath was declared brain-dead by the hospital, her family disagreed. Her case challenges the very nature of existence
Before having her tonsils removed, Jahi McMath, a thirteen-year-old African-American girl from Oakland, California, asked her doctor, Frederick Rosen, about his credentials. “How many times have you done this surgery?” Hundreds of times, Rosen said. “Did you get enough sleep last night?” He’d slept fine, he responded. Jahi’s mother, Nailah Winkfield, encouraged Jahi to keep asking questions. “It’s your body,” she said. “Feel free to ask that man whatever you want.”
Jahi had begged not to get the surgery, but her mother promised that it would give her a better life. Jahi had sleep apnea, which left her increasingly fatigued and unable to focus at school. She snored so loudly that she was too embarrassed to go to slumber parties. Nailah had brought up four children on her own, and Jahi, her second, was her most cautious. When she saw news on television about wars in other countries, she would quietly ask, “Is it going to come here?” Her classmates made fun of her for being “chunky,” and she absorbed the insults without protest. A few times, Nailah went to the school and asked the teachers to control the other students.