“[The hospital] didn’t have any programs or anything to go to,” Angerer said. “It’s nobody’s fault but my own, but it definitely would have been helpful if I didn’t get brushed off.”

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The 18-member committee “will examine the scientific, ethical, social and legal challenges associated with human genome editing,” according to the WHO announcement

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Experts, including our Jeffrey Kahn, weigh in on gene-editing technology

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12 patients who tried injections of stem cells were hospitalized with infections, according to a report in The New York Times that should cause patients concern. More important is that they should investigate stem cell treatments, for conditions such as cartilage injuries to their joints, before committing to one of these procedures

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Unproven therapies should not be marketed to patients.

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“It’s confusing. It’s confusing for even people like me who do this day in and day out,” Alison Bateman-House, a bioethicist at New York University who opposed the federal right-to-try law on the grounds that it would give patients false hope and could potentially lead to patient harm

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The FDA said that it had also written to 20 clinics that offer unapproved stem cell treatments, warning them that such products are generally regulated by the agency and encouraging the clinics to contact federal regulators before November 2020, when enforcement will tighten

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This briefing note from the Nuffield Council on Bioethics examines the ethical issues that can arise when patients and doctors wish to use experimental treatments

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