Chair of research program’s institutional review board details big challenges ahead. “This is the largest government study ever on its own people.” Nancy Kass, Sc.D., a professor of bioethics and public health at the Johns Hopkins Berman Institute of Bioethics was talking about the Precision Medicine Initiative, now called the All of Us Research Program

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President Donald Trump rolled out his first budget request to Congress today. It calls for deep cuts to some federal science agencies. Although the Fogarty may have come into the White House’s crosshairs because of “international” in its title, the work it does helps guard the health of Americans from emerging diseases, says Nancy Kass of the Johns Hopkins Berman Institute of Bioethics

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Johns Hopkins Berman Institute of Bioethics Faculty and others respond to the recent executive order, US refugee resettlement and policy, and related public health and bioethics concerns.

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Berman Institute faculty members are at the table to plan the largest government research undertaking in US history

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The fundamental ethical responsibilities of the cohort IRB remain the same as for any other IRB, Nancy Kass said, but there are particular issues that require sensitivity. Kass is a bioethicist and deputy director for public health in the Johns Hopkins Berman Institute of Bioethics. She also has been tapped by the National Institutes of Health to lead the central IRB for the Precision Medicine Cohort Program

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The trial will focus on patients who have penetrating trauma causing hearts to stop beating. Those patients’ bodies will be cooled down to 50 degrees, in order to buy surgeons time. Our Nancy Kass comments

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The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) is considering US engagement in the global response to the current Ebola epidemic by examining ethical issues that arise when conducting research during a public health emergency. Our Nancy Kass testified about efforts to accelerate development of drugs and vaccines

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Community consultation is the only way to study issues in emergency medicine. “If you require consent for all clinical studies you end up getting into a Catch-22 where you can never systematically learn about anything in an emergency setting,” said Nancy Kass, deputy director of the Johns Hopkins Berman Institute of Bioethics. “A person having a heart attack cannot give consent.”

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