When patients turn to crowdfunding for medical costs, whoever has the most heartrending story wins

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The goal is to create the continent’s first cross-disciplinary guidelines for collecting, storing and sharing data and specimens

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Researchers have analysed anonymized phone records of tens of millions of people in low-income countries. Critics question whether the benefits outweigh the risks

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As regulatory professionals tasked with protecting research subjects, it’s important to understand the unique risks and benefits of social media use for research

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Getting to Know You

May 15, 2019

The power direct-to-consumer giants have to understanding our genetics

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The genome is static, but our ability to analyze it and interpret it is undergoing dramatic change,” said James Evans, a geneticist at the University of North Carolina in Chapel Hill

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The Golden State Killer case was just the start. Hundreds of cold cases are hot again thanks to a new genealogy technique. The price may be everyone’s genetic privacy

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The Privacy Project

April 15, 2019

Boundaries of privacy are in dispute, and its future is in doubt. Citizens, politicians and business leaders are asking if societies are making the wisest tradeoffs. The Times is embarking on this project to explore the technology and where it’s taking us, and to convene debate about how it can best help realize human potential

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