In an unusual move, a leading genetic testing company is putting genetic information from the people it has tested into the public domain, a move the company says could make a large trove of data available to researchers looking for genes linked to various diseases

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The fundamental ethical responsibilities of the cohort IRB remain the same as for any other IRB, Nancy Kass said, but there are particular issues that require sensitivity. Kass is a bioethicist and deputy director for public health in the Johns Hopkins Berman Institute of Bioethics. She also has been tapped by the National Institutes of Health to lead the central IRB for the Precision Medicine Cohort Program

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IBM is looking to enhance the growth of its Watson Health business with the $2.6 billion purchase of Truven Health Analytics, which has data on the cost and treatment of more than 200 million patients.

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Could an algorithm succeed where doctors and guidelines have failed? That’s what the Stanford researchers are hoping to find out

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Michelle Meyer writes, “…And even if it were, proposed new rules for tissue research wouldn’t stop it.”

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A ProPublica review found 35 cases since 2012 in which nursing home or assisted living workers surreptitiously shared photos or videos of residents on social media. At least 16 cases involved Snapchat

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Snooping on celebrities has been a bane for health systems around the country for years. The proliferation of electronic medical records systems has made it easier to track and punish those who peek in records they have no legitimate reason to access

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The federal privacy law known as HIPAA doesn’t cover home paternity tests, fitness trackers or health apps. When a Florida woman complained after seeing the paternity test results of thousands of people online, federal regulators told her they didn’t have jurisdiction

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