The Wellcome Trust recently commissioned Ipsos MORI to look into what people think about commercial organisations having access to health data from patient records. Here Natalie Banner, from the Wellcome Trust’s policy team, explains the key findings from the research, and what we have learned about creating a system that people can trust…

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In an unusual move, a leading genetic testing company is putting genetic information from the people it has tested into the public domain, a move the company says could make a large trove of data available to researchers looking for genes linked to various diseases

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Many of the ads feature patients who have been helped by new medicines, and company scientists working on drug development. Others highlight the financial assistance companies provide to the poor and uninsured, through copay assistance and free-drug programs

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Complaints ensued when attendees at an ecology meeting were asked to get permission before live-tweeting

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The approach was developed in the late 1980s by James Fishkin, a professor at Stanford University. Fishkin has devoted his career to persuading leaders to consult their citizens before making difficult policy decisions. But he says you can’t just do a poll. So Fishkin created what he calls a “deliberative poll.”

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The ability to precisely and accurately change almost any part of any genome, even in complex species such as humans, may soon become a reality through genome editing. But with great power comes great responsibility – and few subjects elicit such heated debates about moral rights and wrongs

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If there’s any area of consensus, it’s in misperceptions of the law: 82 percent of Americans either say the price tag has gone up, or aren’t sure (the law’s price has actually decreased as compared with initial estimates), and only 13 percent know the law met its first-year enrollment goals

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State Assemblyman Ed Braunstein, a Queens Democrat, filed the bill last month in response to a ProPublica article, published in January with the New York Times. The story detailed how the TV show “NY Med” aired the final moments of Mark Chanko’s life while he was being treated at NewYork-Presybterian Hospital/Weill Cornell Medical Center

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