Researchers were surprised at the high reading level required to understand consent forms and how many difficult words appear in informed consent documents. “Ethically, it is important to patients to understand the options available to them,” says Nancy E. Kass, deputy director for public health at the Berman Institute

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The National Institutes of Health (NIH) in Bethesda, Maryland, says it now understands why some of that kind of research won’t easily fit the format of ClinicalTrials.gov, and the agency has delayed for the reporting requirements for another 2 years

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Hopkins on the Hill

June 14, 2019

Hopkins on the Hill event highlights 21 projects that received funding from 16 different government agencies. Event Showcases the Impact, Value, and Range of Federally Funded Research at Johns Hopkins. Featuring our Joseph Ali, and Mario Macis

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Trials of vaccines and treatments have not included enough female participants. Now that scientists are exploring possible cures, the need to enroll women is greater than ever

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As regulatory professionals tasked with protecting research subjects, it’s important to understand the unique risks and benefits of social media use for research

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If all goes as planned, the first clinical trial in the United States testing CRISPR against cancer by altering the DNA of tumor cells inside patients could begin recruiting participants next year, the scientist leading the effort told STAT

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Paul Ndebele, alum of our Fogarty African Bioethics Training Program, writes, “There has been significant growth in international collaborative research implemented in Sub-Saharan Africa over the past three decades… This growth has in part led to debates about the ethics of some of the research.”

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For the past 37 years, a small research lab in Beltsville, Maryland, has been the world’s leading hub for scientists working on Toxoplasma gondii, a parasite that infects more than 1 billion people globally, causing death, blindness, and birth defects

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