
James Toomey writes that the core argument—that unless Facebook’s suicide prediction algorithm is subject to the regulatory regime of medicine and operated on an opt-in basis it is morally problematic—is misguided and alarmist
Quick ReadJames Toomey writes that the core argument—that unless Facebook’s suicide prediction algorithm is subject to the regulatory regime of medicine and operated on an opt-in basis it is morally problematic—is misguided and alarmist
James Toomey writes that the core argument—that unless Facebook’s suicide prediction algorithm is subject to the regulatory regime of medicine and operated on an opt-in basis it is morally problematic—is misguided and alarmist
In a piece in The Guardian and a forthcoming article in the Yale Journal of Law and Technology, Bill of Health contributor Mason Marks recently argued that Facebook’s suicide prediction algorithm is dangerous and ought to be subject to rigorous regulation and transparency requirements. Some of his suggestions (in particular calls for more data and suggestions that are really more about how we treat potentially suicidal people than about how we identify them) are powerful and unobjectionable.
But Marks’s core argument—that unless Facebook’s suicide prediction algorithm is subject to the regulatory regime of medicine and operated on an opt-in basis it is morally problematic—is misguided and alarmist.
With its suicide prediction algorithm, Facebook is doing something magnificent. It has the real potential to mitigate one of the most intractable sources of human suffering in the world. Of course it’s not perfect. I would like to see real efficacy data based on actual suicide outcomes, as much as Marks surely does. I’m sure Facebook would, too. They obviously want the program to work. But while waiting for data, we should celebrate, not denigrate, Facebook’s efforts — and there is no reason to subject them to bureaucratic and extremely restrictive healthcare regulations, nor insist that the program be opt-in.
…continue reading ‘On Social Suicide Prevention, Don’t Let the Perfect be the Enemy of the Good’
The Latest Instagram Influencer Frontier? Medical PromotionsFebruary 15, 2019 |
Big pharma is partnering with influencers to sell new drugs and medical devices
Big pharma is partnering with influencers to sell new drugs and medical devices
Louise Roe has denim that’s ripped in all the right places, a bikini-ready body year-round, a husband and baby who look like they were picked from a catalog, and 698,000 Instagram followers. She also has the skin condition psoriasis, a chronic autoimmune disease defined by flaky, inflamed red or white patches of skin, and she wants you to know all about it.
Actually, she needs to tell you about her psoriasis on Instagram; otherwise, her paid partnership with Celgene, a biotechnology company that produces the patent-protected psoriasis medication Otezla, would presumably be canceled.
In recent years, businesses have adapted their advertising strategies to the rise in social media use, specifically on Instagram. The app is one of the most popular social networks, surpassed only by its parent company, Facebook, and is projected to have more than 111 million users in 2019 — more than half of whom are between ages 18 and 29. The high level of Instagram user engagement gives companies an opportunity to capitalize on users with thousands of followers, aptly dubbed “influencers,” through paid advertising partnerships.
…continue reading ‘The Latest Instagram Influencer Frontier? Medical Promotions’
Image: By Willedit4food – Own work, CC BY-SA 4.0, https://commons.wikimedia.org/w/index.php?curid=75651269
Facebook Under Pressure to Halt the Rise of Anti-Vaccination GroupsFebruary 12, 2019 |
Experts are calling on company to counter closed groups where members can post misinformation without challenge
Experts are calling on company to counter closed groups where members can post misinformation without challenge
Facebook is under pressure to stem the rise of anti-vaccination groups spreading false information about the dangers of life-saving vaccines while peddling unfounded alternative treatments such as high doses of vitamin C.
So-called “anti-vaxxers” are operating on Facebook in closed groups, where members have to be approved in advance. By barring access to others, they are able to serve undiluted misinformation without challenge.
The groups are large and sophisticated. Stop Mandatory Vaccination has more than 150,000 approved members. Vitamin C Against Vaccine Damage claims that large doses of the vitamin can “heal” people from vaccine damage, even though vaccines are safe.
…continue reading ‘Facebook Under Pressure to Halt the Rise of Anti-Vaccination Groups’
Image via Flickr Some rights reserved by avlxyz
People Can Predict Your TweetsJanuary 22, 2019 |
Even if you aren’t on Twitter. Companies have made billions of dollars by turning everything we say, do, and look at online into an experiment in consumer profiling. Recently, some users have had enough, curtailing their use of social media or deleting their accounts completely. But that’s no guarantee of privacy
Even if you aren’t on Twitter. Companies have made billions of dollars by turning everything we say, do, and look at online into an experiment in consumer profiling. Recently, some users have had enough, curtailing their use of social media or deleting their accounts completely. But that’s no guarantee of privacy
Companies have made billions of dollars by turning everything we say, do, and look at online into an experiment in consumer profiling. Recently, some users have had enough, curtailing their use of social media or deleting their accounts completely. But that’s no guarantee of privacy, according to a new study. If you can be linked to other users, their activity can expose you, too. Now, computer scientists have shown that the Twitter streams of your 10 closest contacts can predict your future tweets even better than your own stream.
“It’s much easier than it looks,” to figure out a person’s character from such second-hand surveillance, says David Garcia, a computational social scientist at the Medical University of Vienna in Austria who was not involved in the study.
Instead of predicting anyone’s actual tweets, researchers at the University of Vermont in Burlington estimated how predictable a person’s future words would be, using a measurement known as entropy. More entropy means more randomness and less repetition. They looked at the Twitter streams of 927 users, each of whom had 50 to 500 followers, as well as the 15 users each of them had tweeted at the most. In each individual’s stream, they calculated how much entropy the sequence of words contained. (On average, tweeters had more entropy than Ernest Hemingway, less than James Joyce.) They then plugged that number into a tool from information theory called Fano’s inequality to calculate how well a person’s stream could predict the first word in his or her next tweet. That upper bound on accuracy was, on average, 53%. But predicting each successive word is somewhat less accurate.
…continue reading ‘People Can Predict Your Tweets’
A police officer on the late shift in an Ohio town recently received an unusual call from Facebook. Earlier that day, a local woman wrote a Facebook post saying she was walking home and intended to kill herself when she got there, according to a police report on the case
A police officer on the late shift in an Ohio town recently received an unusual call from Facebook. Earlier that day, a local woman wrote a Facebook post saying she was walking home and intended to kill herself when she got there, according to a police report on the case
A police officer on the late shift in an Ohio town recently received an unusual call from Facebook.
Earlier that day, a local woman wrote a Facebook post saying she was walking home and intended to kill herself when she got there, according to a police report on the case. Facebook called to warn the Police Department about the suicide threat.
The officer who took the call quickly located the woman, but she denied having suicidal thoughts, the police report said. Even so, the officer believed she might harm herself and told the woman that she must go to a hospital — either voluntarily or in police custody. He ultimately drove her to a hospital for a mental health work-up, an evaluation prompted by Facebook’s intervention. (The New York Times withheld some details of the case for privacy reasons.)
Police stations from Massachusetts to Mumbai have received similar alerts from Facebook over the last 18 months as part of what is most likely the world’s largest suicide threat screening and alert program. The social network ramped up the effort after several people live-streamed their suicides on Facebook Live in early 2017. It now utilizes both algorithms and user reports to flag possible suicide threats.
…continue reading ‘In Screening for Suicide Risk, Facebook Takes On Tricky Public Health Role’
Image via Flickr Some rights reserved by stockcatalog
Participants in medical research are more empowered than ever to influence the design and outcomes of experiments. Now, researchers are trying to keep up
Participants in medical research are more empowered than ever to influence the design and outcomes of experiments. Now, researchers are trying to keep up
Amber Sapp was browsing the Internet late one night in August when she happened to find out that her 12-year-old son’s clinical trial had failed.
Every four weeks for two-and-a-half years, she had shuttled Garrett to a hospital nearly six hours away. There, he was prodded and pricked with needles in the hope that the antibody treatment being tested would reverse a devastating genetic disease called Duchenne muscular dystrophy. But an early data analysis, Sapp learnt, had shown that the treatment wasn’t working.
The thought of wasting Garrett’s limited time with a failed trial was hard enough. The news was all the more disturbing because it didn’t come from the trial organizers, but through a Facebook post from another parent. “It was upsetting that we found out that way,” says Amber. “It sent everybody on Facebook into a tizzy.” Even Garrett’s local clinical-trial coordinator, someone who should have had intimate knowledge of what was happening with the research, hadn’t yet heard the news.
…continue reading ‘How Facebook and Twitter Could Be The Next Disruptive Force in Clinical Trials’
Thumbimage via Nature – Abigail Bobo
As Social Media ‘Influencers,’ Patients Are Getting a Voice.November 13, 2018 |
And pharma is ready to pay up. Anne Marie Ciccarella is not a doctor, though she spends a great deal of time with them. She’s not a researcher, though she routinely pores over scientific papers on cancer. And even though she spent most of her career at an accounting firm, she’s getting paid by drug companies for her opinions
And pharma is ready to pay up. Anne Marie Ciccarella is not a doctor, though she spends a great deal of time with them. She’s not a researcher, though she routinely pores over scientific papers on cancer. And even though she spent most of her career at an accounting firm, she’s getting paid by drug companies for her opinions
Anne Marie Ciccarella is not a doctor, though she spends a great deal of time with them. She’s not a researcher, though she routinely pores over scientific papers on cancer. And even though she spent most of her career at an accounting firm, she’s getting paid by drug companies for her opinions.
Ciccarella is one of a growing number of people who have leveraged their experiences as patients and the loyal followings they’ve built on social media into a career, no matter how small their audience.
For years, so-called influencers — celebrities, former reality television contestants and sometimes, former lawyers or other professionals — have hawked diet teas and hair products everywhere from Facebook to Snapchat. And now, pharma is catching on.
…continue reading ‘As Social Media ‘Influencers,’ Patients Are Getting a Voice. ‘
Thumbimage via Alex Hogan/STAT
Findings suggest much of the online discussion about vaccines may be linked to ‘malicious actors’ with ‘hidden agendas’
Findings suggest much of the online discussion about vaccines may be linked to ‘malicious actors’ with ‘hidden agendas’
Social media bots and Russian trolls sowed discord and spread false information about vaccines on Twitter, according to a new study conducted by researchers at Johns Hopkins University and other institutions.
Using tactics similar to those at work during the 2016 United States presidential election, these Twitter accounts entered into vaccine debates months before election season was under way. The study, “Weaponized Health Communication: Twitter Bots and Russian Trolls Amplify the Vaccine Debate,” was published Thursday in the American Journal of Public Health.
The research team included Mark Dredze, an associate professor in the Department of Computer Science at Johns Hopkins and a pioneer in the collection and study of social media data to monitor flu cases, mental illness trends, and other health concerns. Hopkins computer science graduate students Tao Chen and Adrian Benton, as well as researchers from George Washington University and the University of Maryland, also contributed to the study. …
Image via Flickr Some rights reserved by Alan O’Rourke