Researchers were surprised at the high reading level required to understand consent forms and how many difficult words appear in informed consent documents. “Ethically, it is important to patients to understand the options available to them,” says Nancy E. Kass, deputy director for public health at the Berman Institute

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Anne Drapkin Lyerly, a bioethicist and obstetrician, said that there is a deep-seated norm to leave pregnant women out of clinical trials, reinforced by policies that have classified them as “vulnerable” and institutional rules that have made it easier to avoid considering the ­potential risks and benefits altogether

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One of the projects has already received funding from the National Institutes of Health’s (NIH’s) National Institute of Allergy and Infectious Diseases (NIAID) in Bethesda, Maryland, and will start in a few weeks; the other is awaiting funding

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More than half of older Americans lack the skills to gather and understand medical information. Providers must simplify, researchers say

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Our Rebecca Wilbanks writes, ‘What is life? For much of the 20th century, this question did not particularly concern biologists. Life is a term for poets, not scientists, argued the synthetic biologist Andrew Ellington in 2008, who began his career studying how life began.’

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Inside the controversial world of epigenetics research

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“I thought it would be good to get tested,” says Steyn. “I thought this is something I should know.” She ordered a $200 testing kit from the company, 23andme, spit into a small plastic tube, sent it back and waited for the results

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Research shows that women overestimate their risk of cancer and overestimate the potential of dying of cancer. This anxiety may prompt women to seek aggressive interventions even when they do not have cancer

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