2014 Bioethics Conference Introduction

New Opportunities, New Challenges: Exploring the Ethical Boundaries of Pediatric Research
In July 2005, Seattle Children’s hosted its first annual pediatric bioethics conference, entitled “Current Controversies in Pediatric Research Ethics”. Now, a decade later, we revisit the topic as we focus on the changing and challenging world of pediatric bioethics – “New Opportunities, New Challenges: Exploring the Ethical Boundaries of Pediatric Research”. An impressive lineup of speakers will examine a wide range of questions and issues:

 

  • Parents of seriously ill children are often desperate for new therapies, even if in early phase trials. Is truly voluntary consent possible in such a situation?
  • Social media allows researchers to “eavesdrop” on adolescent behavior. Should there be constraints on this type of investigation?
  • Is it ever acceptable to conduct research in developing countries that would be considered inappropriate in the United States?
  • If hospitals set up biobanks for research, what is needed to ensure public trust?

 

Videos for the full conference are available online now. Here is what our Nancy Kass, ScD, Deputy Director for Public Health, had to say:

 

A Conversation About Ethical Challenges in Pediatric Research

 

 

The SUPPORT Trial and Ethical Issues Raised by Comparative Effectiveness Trials

 

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Nancy Kass

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