Expert group recommends long-term tracking, other restrictions for germline tinkering. Jeffrey Kahn, a bioethicist at Johns Hopkins University, says the door to heritable gene therapy remains closed until stringent requirements can be met. “It’s frankly more of a knock on the door,” he said at the public presentation of the report

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Human Genome Editing

February 15, 2017

Science, Ethics, and Governance. The National Academies has published a consensus study by a multidisciplinary team of experts, including our Jeffrey Kahn,

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Having access to the internet is increasingly considered to be an emerging human right. International organizations and national governments have begun to formally recognize its importance to freedom of speech, expression and information exchange. The next step to help ensure some measure of cyber peace online may be for cybersecurity to be recognized as a human right, too

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Most people are aware they can donate their organs when they die. Doing so is very important: Each deceased donor can save several lives if he donates his organs and tissue and they are used for transplantation. …. But organs aren’t the only thing that you can donate once you’re dead. What about donating your medical data?

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‘Right to Try’ Is a Sham

February 14, 2017

Richard Plotkin writes: “Congress is considering “Right to Try” (RTT) bills related to the use of unapproved medical products by patients diagnosed with a terminal illness. In essence, these bills seek to remove the use of experimental medical products outside of clinical trials from the oversight of the Food and Drug Administration (FDA) based on the false claim that the FDA moves too slowly….”

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With the conclusion of the International Summit on Human Gene Editing, the second component of the Initiative began: a study of the scientific underpinnings of human gene-editing technologies, their potential use in biomedical research and medicine — including human germline editing — and the clinical, ethical, legal, and social implications of their use. Read the results of this study now. Committee includes our Jeffrey Kahn

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Since he watched his mother drop dead, Richard Bridgman’s fear of death has left him emotionally paralyzed. “Everybody has a fear of death, no matter what culture, religion or country they come from,” said Kelvin Chin, author of “Overcoming the Fear of Death” and founder of the Overcoming the Fear of Death Foundation

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Familial searching allows investigators to look through databases with wider parameters to identify people who are most likely close relatives of the person who may have committed a crime. But the method has raised ethical questions. Many see it as an invasion of privacy that draws an innocent group of people — and their DNA — into criminal inquiries based on their blood relation to a suspect or someone convicted of a crime

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